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Navigating Risks and Professional Roles: Research with Lesbian, Gay, Bisexual, Trans, and Queer Young People with Intellectual Disabilities

Zack Marshall, Stephanie Nixon, Denise Nepveux, Tess Vo, Ciann Wilson, Sarah Flicker, Alex McClelland and Devon Proudfoot
Journal of Empirical Research on Human Research Ethics: An International Journal
Vol. 7, No. 4 (October 2012), pp. 20-33
Published by: Sage Publications, Inc.
DOI: 10.1525/jer.2012.7.4.20
Stable URL: http://www.jstor.org/stable/10.1525/jer.2012.7.4.20
Page Count: 14
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Navigating Risks and Professional Roles: Research with Lesbian, Gay, Bisexual, Trans, and Queer Young People with Intellectual Disabilities
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Abstract

we examine ethical issues that emerged during a community-based participatory research (CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning (LGBTQ) young people (ages 17–26) labeled with intellectual disabilities. These ethical concerns included: (1) managing the risk of coercion, (2) consent to participate in the study, (3) issues of confidentiality and disclosure, (4) balancing beneficence with self-determination, and (5) role conflict for researcher-practitioners who participate in CBPR projects. Incorporating critical disability perspectives and a heightened awareness of professional role conflict into CBPR practices has the potential to foster development of more inclusive and accessible sexual health initiatives and research environments.

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