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Ethical Challenges and Opportunities for Nurses in HIV and AIDS Community-Based Participatory Research in Jamaica
Colleen M. Davison, Eulalia Kahwa, Uki Atkinson, Cerese Hepburn-Brown, Joyette Aiken, Pauline Dawkins, Tania Rae, Nancy Edwards, Susan Roelofs and Denise MacFarlane
Journal of Empirical Research on Human Research Ethics: An International Journal
Vol. 8, No. 1 (February 2013), pp. 55-67
Published by: Sage Publications, Inc.
Stable URL: http://www.jstor.org/stable/10.1525/jer.2013.8.1.55
Page Count: 13
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As part of a multinational program of research, we undertook a community-based participatory research project in Jamaica to strengthen nurses’ engagement in HIV and AIDS policy. Three leadership hubs were purposefully convened and included small groups of people (6–10) from diverse HIV and AIDS stakeholder groups in Jamaica: frontline nurses and nurse managers in primary and secondary care settings; researchers; health care decision makers; and other community members. People living with HIV or AIDS were among the hub members. Using a relational public health ethics framework, we outline some of the ethical challenges and opportunities experienced by the research team and the leadership hubs. Data included research assistant field notes and hub progress reports. Emerging ethical concerns were associated with relational personhood, social justice, relational autonomy, relational solidarity, and sustainability of the hub activities.
© 2013 by Joan Sieber