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AZIONE VOLONTARIA, AZIONE RIFLESSIVA E PARTECIPAZIONE: IL CASO DELL'ASSOCIAZIONE REGIONALE SARDA PER LA LOTTA ALLA TALASSEMIA E L'ASSISTENZA AI TALASSEMICI

ANTONIO FADDA and ANTONIETTA MAZZETTE
Studi di Sociologia
Anno 27, Fasc. 4 (ottobre-dicembre 1989), pp. 499-511
Stable URL: http://www.jstor.org/stable/23004176
Page Count: 13
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Since scans are not currently available to screen readers, please contact JSTOR User Support for access. We'll provide a PDF copy for your screen reader.
AZIONE VOLONTARIA, AZIONE RIFLESSIVA E PARTECIPAZIONE: IL CASO DELL'ASSOCIAZIONE REGIONALE SARDA PER LA LOTTA ALLA TALASSEMIA E L'ASSISTENZA AI TALASSEMICI
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Abstract

The article analyses the concepts of citizenship, marginality and belonging in the transition from industrial society to the present phase of crisis of the Welfare State. Whitin this general from the role of voluntary agencies is stressed with particular reference to those acting in the health sector. Attention has been directed towards: a) the subjects involved as actors and/or users of voluntary agencies; b) the services created by and for such subjects; c) their position in relation with the social structures offered by the Welfare State; d) the whole series of demands for services coming from the weakest subjects. The theoretical points are verified through a comparisons between the specific case of the Regional Sardinian Association for the fight against Beta Thalassemia Major and assistance to people affected by thalassemia, the condition of the people served by this assistance and the public health structures of the Sardinian Region.

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