You are not currently logged in.
Access JSTOR through your library or other institution:
If You Use a Screen ReaderThis content is available through Read Online (Free) program, which relies on page scans. Since scans are not currently available to screen readers, please contact JSTOR User Support for access. We'll provide a PDF copy for your screen reader.
Managing Communication With Young People Who Have A Potentially Life Threatening Chronic Illness: Qualitative Study Of Patients And Parents
Bridget Young, Mary Dixon-Woods, Kate C. Windridge and David Heney
BMJ: British Medical Journal
Vol. 326, No. 7384 (Feb. 8, 2003), pp. 305-308
Published by: BMJ
Stable URL: http://www.jstor.org/stable/25453609
Page Count: 4
You can always find the topics here!Topics: Parents, Children, Parent child communication, Diseases, Professional communication, Communication facilities, Medical personnel, Child psychology, Depth interviews, Cinerary urns
Were these topics helpful?See somethings inaccurate? Let us know!
Select the topics that are inaccurate.
Since scans are not currently available to screen readers, please contact JSTOR User Support for access. We'll provide a PDF copy for your screen reader.
Preview not available
Objectives To examine young people's and parents' accounts of communication about cancer in childhood. Design Semistructured interviews analysed using the constant comparative method. Setting Paediatric oncology unit. Participants 13 families, comprising 19 parents (13 mothers, six fathers) and 13 patients aged 8-17 years. The patients had cancer or brain tumour. Results Most parents described acting in an executive-like capacity, managing what and how their children were told about their illness, particularly at the time of diagnosis. Their accounts were shaped by concerns to manage their identity as strong and optimistic parents and to protect their child's wellbeing. The patients identified elements of their parents' role that both facilitated and constrained their communication, and while they welcomed their parents' involvement, some expressed unease with the constraining aspects of their parents' role. Some young people described feeling marginalised in consultations and pointed to difficulties they experienced in encounters with some doctors. Conclusions There are difficulties in managing communication with young people who have a chronic, life threatening illness. Health professionals need to be aware of how the social positioning of young people (relative to adults) and the executive role of parents can contribute to the marginalisation of young people and hamper the development of successful relationships between themselves and young patients.
BMJ: British Medical Journal © 2003 BMJ