Access

You are not currently logged in.

Access your personal account or get JSTOR access through your library or other institution:

login

Log in to your personal account or through your institution.

If You Use a Screen Reader

This content is available through Read Online (Free) program, which relies on page scans. Since scans are not currently available to screen readers, please contact JSTOR User Support for access. We'll provide a PDF copy for your screen reader.

National Symposium on Problems of Presymptomatic Testing for Huntington's Disease, Cardiff

Audrey Tyler and Michael Morris
Journal of Medical Ethics
Vol. 16, No. 1 (Mar., 1990), pp. 41-42
Published by: BMJ
Stable URL: http://www.jstor.org/stable/27716879
Page Count: 2
  • Read Online (Free)
  • Cite this Item
Since scans are not currently available to screen readers, please contact JSTOR User Support for access. We'll provide a PDF copy for your screen reader.
Preview not available
Preview not available

Abstract

Presymptomatic testing for Huntington's disease has given rise to several ethical problems relating to such issues as confidentiality, the privacy of the individual, the testing of minors and informed consent in connection with blood sample donation. A multidisciplinary conference of staff from genetic centres involved with presymptomatic testing was organised in Cardiff to discuss these and other problems. Recommendations on good practice are described under four headings: pre- and post-test counselling; confidentiality in relation to test results; collection and storage of DNA, and criteria for testing.

Page Thumbnails

  • Thumbnail: Page 
[41]
    [41]
  • Thumbnail: Page 
42
    42