Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey
Debra E. Irwin, Brian D. Stucky, David Thissen, Esi Morgan DeWitt, Jin Shei Lai, Karin Yeatts, James W. Varni and Darren A. DeWalt
Quality of Life Research
Vol. 19, No. 4 (May 2010), pp. 585-594
Published by: Springer
Stable URL: https://www.jstor.org/stable/40605992
Page Count: 10
You can always find the topics here!Topics: Asthma, Chronic diseases, Quality of life, Emotional distress, Parents, Child health services, Legacies, Health care administration, Psychometrics, Pediatrics
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Purpose This paper describes a large-scale administration of the Patient-Reported Outcomes Measurement Information System (PROMIS) pediatrie items to evaluate measurement characteristics. Methods Each child completed one of seven test forms containing items from a pool of 293 PROMIS items and four legacy scales. PROMIS items covered six domains (physical function, emotional distress, social role relationship, fatigue, pain, and asthma). Results From January 2007 to May 2008, 4,129 children aged 8-17 were enrolled. The sample was 51% female, 55% aged 8-12,42% minority race and 17% were Hispanic ethnicity. Approximately, 35% of the children participating in the survey consulted a clinician for a chronic illness diagnosis or treatment within 6 months prior to study enrollment. Conclusions The final PROMIS pediatrie item banks include physical function (n = 52 items), emotional distress (n = 35 items), social role relationships (n = 15 items), fatigue (n = 34 items), pain (n = 13 items), and asthma (n = 17 items). The initial calibration data were provided by a diverse set of children with varying health states (e.g., children with a variety of common chronic illnesses) and racial/ethnic backgrounds.
Quality of Life Research © 2010 Springer